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April 25, 2019

Bronchiectasis and COPD Patients in US Face High Financial Burden, Study Says

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The financial burden associated with healthcare costs is relatively high for U.S. patients with chronic obstructive pulmonary disease (COPD) or bronchiectasis, especially for those who are affected by both ... Read more

April 25, 2019April 25, 2019

Nonprofit Group Works to Raise Rare Disease Awareness in India

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With an estimated 1.37 billion inhabitants, India will likely surpass China in five years as the world’s most populous country. That also means it will have more rare-disease patients ... Read more

April 18, 2019April 18, 2019

Nucala Can Help Manage Symptoms of Severe Eosinophilic Asthma with Bronchiectasis, Pilot Study Shows

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Nucala (mepolizumab) can help manage the respiratory symptoms of patients with severe uncontrolled asthma and diagnosed bronchiectasis, results from a pilot study show. This finding suggests that targeting the signaling ... Read more

April 11, 2019April 11, 2019

Common Allergens Linked to Poorer Lung Function in Non-CF Bronchiectasis

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Patients with non-cystic fibrosis bronchiectasis across the world have high rates of sensitization to airborne allergens, namely house dust mite and the fungus Aspergillus fumigatus, a new study shows. As ... Read more

April 4, 2019April 4, 2019

Vitamin D Deficiency Can Predict Severity of Bronchiectasis, Study Says

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The majority of patients with bronchiectasis are deficient in vitamin D, a feature that was found to be correlated with bronchiectasis clinical and radiological severity, a study shows. The study, “Vitamin D ... Read more

March 28, 2019March 28, 2019

More than Half of Bronchiectasis Patients Have Chronic Rhinosinusitis, Study Finds

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Up to 62 percent of adults with bronchiectasis also have chronic rhinosinusitis (CRS), which is associated with poorer quality of life, a greater degree of disease severity, and more ... Read more

March 21, 2019March 21, 2019

Bronchiectasis Care is Expensive, But Hospitalizations Significantly Add to Cost, Study Shows

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Hospitalization markedly increases the costs of bronchiectasis care and management, especially in patients who experience flare-ups, a review of published studies shows. The study with that finding, “The economic ... Read more

March 15, 2019March 15, 2019

Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn

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Madeline Collin, a 24-year-old activist with Gaucher disease, worries that patients like her will suffer deeply if Britain leaves the European Union (EU), as scheduled, at the end of ... Read more

March 14, 2019March 14, 2019

New Antibiotic Formulation Better at Controlling Infections in Bronchiectasis

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Inhaled antibiotics have been proposed as efficient treatments to reduce bacterial infections in bronchiectasis patients. Now researchers have shown that a new formulation of antibiotics using nanoparticles, called nanoplex, ... Read more

March 11, 2019March 11, 2019

Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

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With each new advance in medicine comes ethical dilemmas, from fertility treatments and newborn screening, to vaccinations, gene therapies and euthanasia. But rare diseases and the expensive therapies needed ... Read more

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