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October 17, 2019October 17, 2019

Bronchiectasis Affects More People in UK than Previously Thought, with Number of Cases Rising, Survey Says

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The incidence of non-cystic fibrosis bronchiectasis is increasing in the United Kingdom (U.K.), with the number of cases much higher than previously thought, according to a survey commissioned by the ... Read more

October 10, 2019October 10, 2019

Pregnancy-related Protein Linked to Chest Infections and Bronchiectasis Severity, Study Suggests

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A protein associated with pregnancy is linked to disease severity and frequent exacerbations in people with bronchiectasis and chronic chest infections (that are mostly caused by Pseudomonas aeruginosa), a ... Read more

October 3, 2019October 3, 2019

Amoxicillin-Clavulanate Recommended to Treat Non-severe Flare-ups of Bronchiectasis in Children, Trial Shows

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The combination of amoxicillin with clavulanate should remain the oral antibiotic of choice to treat non-severe flare-ups of bronchiectasis in children, results of a Phase 4 trial indicate. The ... Read more

September 27, 2019September 27, 2019

NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC

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Next month’s annual conference of the National Organization for Rare Disorders (NORD) in Washington, D.C., couldn’t come at a better time, says Marshall Summar, MD, chairman of NORD’s board ... Read more

September 26, 2019September 26, 2019

Study Examines Risk Factors for Bacterial Colonization in Bronchiectasis

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Among people with bronchiectasis, those more than 55 years old or who have bronchiectasis as a result of infection, are at an increased risk of being colonized with the ... Read more

September 5, 2019September 5, 2019

Long-term Macrolide Treatment Linked to Significant Reduction in Bronchiectasis Exacerbations, Study Shows

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Long-term treatment with macrolides — a class of antibiotics — is associated with a significant reduction in the frequency of exacerbations in people with bronchiectasis, a study shows. The ... Read more

September 2, 2019August 30, 2019

‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases

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Rare diseases deeply affect not only the children who experience them, but also their healthy brothers and sisters, as their parents can attest. Two entries in November’s “Disorder: ... Read more

August 29, 2019August 29, 2019

New Distribution Partnerships for SmartVest System Announced

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Electromed has entered into new agreements with two home medical equipment distributors to enhance the distribution of and facilitate access to its SmartVest Airway Clearance System for people with ... Read more

August 28, 2019August 28, 2019

At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing

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Developing gene therapies for rare diseases is one thing. Creating gene-edited “designer babies” is quite another. German legal expert Timo Minssen outlined the potentially explosive ethical landmines surrounding such ... Read more

August 22, 2019August 22, 2019

High Incidence of Bronchiectasis Among Children with Severe Asthma, UK Study Found

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A high incidence of bronchiectasis was found among children with severe asthma in a study conducted in the U.K. The study also revealed that performing computed tomography (CT) scans in ... Read more

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