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August 22, 2019August 22, 2019

High Incidence of Bronchiectasis Among Children with Severe Asthma, UK Study Found

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A high incidence of bronchiectasis was found among children with severe asthma in a study conducted in the U.K. The study also revealed that performing computed tomography (CT) scans in ... Read more

August 19, 2019August 19, 2019

Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

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Imagine living your whole life with a painful disease so rare that only 25 others worldwide have what you have. And that you’re one of just six such people ... Read more

August 15, 2019

More Studies Needed on Antibiotic Use in Children With Bronchiectasis, Review Finds

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A lack of data on the use of different antibiotics to treat and/or prevent acute exacerbations in children with bronchiectasis highlights the need for more research in this area, ... Read more

August 8, 2019August 8, 2019

Frequent Disease Exacerbations Linked to Worse Quality of Life for Australian Bronchiectasis Patients, Study Shows

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People with bronchiectasis who experience frequent exacerbations — three or more in the previous year — have a worse quality of life, and use more healthcare resources, according to ... Read more

August 2, 2019August 2, 2019

Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

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Oklahoma suffers more tornadoes than any other state, has the highest per-capita rate of women in U.S. prisons, ranks second in the number of teen births per 100,000 teenage ... Read more

August 1, 2019

Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate

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Screening newborns for genetic diseases with treatments that can prevent crippling or deadly progression, especially for rare disorders, has a ways to go in the United States. No state ... Read more

August 1, 2019August 1, 2019

Bronchiectasis Patients Have Worse Quality of Life if Disease is COPD-related and More Severe, Study Says

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The quality of life of patients with bronchiectasis is heavily affected by the root cause and severity of their disease, with worse quality of life if the cause is ... Read more

July 25, 2019July 25, 2019

P. aeruginosa Adapt in Lungs to Make Mucus Harder to Clear, Study Finds

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Pseudomonas aeruginosa, the most common bacterial infection found in bronchiectasis patients, can adapt in the lungs and acquire a mucoid state that makes sputum harder to clear, new research ... Read more

July 18, 2019July 18, 2019

European Initiative Targets Diagnosis, Treatment of Rare Diseases

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A new international consortium based in Paris, and funded largely by the 28-member European Union, intends to speed the diagnosis of rare diseases, while also accelerating the development of ... Read more

July 18, 2019July 18, 2019

Life Quality in Bronchiectasis Patients Greatly Affected by Activity Levels, Mental Health and Inflammation, Study Says

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Overly short daily walks and weak legs, mental distress, and systemic inflammation considerably impact quality of life in people with bronchiectasis and severe asthma, a study suggests. “Extrapulmonary associations ... Read more

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