News

December 6, 2019

HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases

News

Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases and ensuring timely, affordable access to lifesaving treatments, the nation’s ... Read more

December 5, 2019December 5, 2019

People With Blood Cancers More Prone to Develop Bronchiectasis, Study Finds

News

People with blood cancers are more prone to develop bronchiectasis, which in turn contributes to an increased mortality risk, a study found. The study, “De novo bronchiectasis in haematological ... Read more

November 21, 2019November 21, 2019

Aradigm Ends Effort to Win EU Approval for Linhaliq in Treating NCFBE Chronic Lung Infections

News

Aradigm has withdrawn its application to the European Medicines Agency (EMA) requesting approval of Linhaliq for the treatment and prevention of flares in non-cystic fibrosis bronchiectasis patients with chronic lung infections linked ... Read more

November 14, 2019November 14, 2019

Parents of Children with Bronchiectasis Have More Anxiety, Depression, Study Reports

News

Parents of children with bronchiectasis report higher levels of anxiety and depression, underscoring the need for more attention to the psychological well-being of parents, according to a study. The ... Read more

November 13, 2019

Rare Disease Film Festival Highlights Patient and Researcher Unity

News

Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 and 10 in San Francisco. ... Read more

November 12, 2019

Diet Suggestions to Support Health, Quality of Life of Bronchiectasis Patients: A Nutritionist’s View

News

Bronchiectasis is a respiratory disease that affects nutritional status and quality of life. Being underweight and malnourished, due to increased energy and protein needs, as well as obesity, are ... Read more

November 7, 2019November 7, 2019

Bone Frailty High Among Bronchiectasis Patients, Study Suggests

News

Bronchiectasis patients seem to have a higher prevalence of osteopenia (low bone density) and osteoporosis (severely weakened bones) at younger ages than the general population, a single-center study suggests. ... Read more

October 31, 2019October 31, 2019

Alaxia Joins iABC Consortium to Accelerate Development of ALX-009, Its Lead Antimicrobial Agent

News

Alaxia has joined the inhaled Antibiotics in Bronchiectasis and Cystic Fibrosis (iABC) consortium as a partner in a collaborative project that seeks to accelerate the development of two inhaled ... Read more

October 24, 2019October 24, 2019

Inhaled Ciprofloxacin May Help Prevent Bronchiectasis Exacerbation, but More Studies are Needed, Review Suggests

News

Treatment with inhaled ciprofloxacin medications — such as Aradigm’s Apulmiq or Bayer’s Ciprofloxacin DPI investigational therapies — holds potential to prevent acute worsening of respiratory problems in patients with ... Read more

October 17, 2019October 17, 2019

Bronchiectasis Affects More People in UK than Previously Thought, with Number of Cases Rising, Survey Says

News

The incidence of non-cystic fibrosis bronchiectasis is increasing in the United Kingdom (U.K.), with the number of cases much higher than previously thought, according to a survey commissioned by the ... Read more

Pin It on Pinterest