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June 20, 2019June 20, 2019

Bronchiectasis Patients Unlikely to Transmit Bacteria to Others Through Coughing, Study Suggests

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Although patients with bronchiectasis and chronic obstructive pulmonary disease (COPD) release bacteria when they cough, this process does not appear to contribute to the spread of infection to the ... Read more

June 17, 2019June 17, 2019

‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

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People with rare diseases know that the right government policies can make a big difference in the quality of their own lives, and those of their caregivers. But most ... Read more

June 13, 2019June 13, 2019

Asthma a Common Cause, Risk Factor for Bronchiectasis in Finland, Registry Study Reveals

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Asthma is a common cause and complication of bronchiectasis, triggering the disease in about one quarter of patients who live in Helsinki, Finland’s capital, a registry-based study found. Patients ... Read more

June 6, 2019June 6, 2019

NEATstik Shows Potential as Rapid Test for Chest Infection and Risk of Exacerbations in Bronchiectasis

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NEATstik, a test developed by ProAxsis, shows potential as a quick tool for assessing bronchiectasis severity, the presence of airway infections, and the risk of future disease exacerbations, early data ... Read more

May 31, 2019May 31, 2019

Antibiotics May Improve Quality of Life of Bronchiectasis Patients with High Bacterial Load, Study Suggests

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Inhaled antibiotics appear to improve the quality of life of bronchiectasis patients, especially when they have a high bacterial load, a study suggests. This means that bacterial load may ... Read more

May 27, 2019May 27, 2019

Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

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RaDaR, the catchy new name for the U.S. government-run Rare Diseases Registry Program, aims to help patient advocacy groups with limited resources build their own disease registries. The site ... Read more

May 23, 2019May 23, 2019

Lung Bacteria Composition Tends to Remains Stable, May Correlate with Lung Function in nCFB, Study Says

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The composition of bacteria living inside the lungs of people with non-cystic fibrosis bronchiectasis tends to remain stable over time, and may correlate with patients’ lung function, a study ... Read more

May 17, 2019May 17, 2019

Treatment Algorithm Centered on Chest Physiotherapy May Minimize Lung Function Decline, Study Says

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A treatment algorithm centered on the use of high-frequency chest wall oscillation (HFCWO) therapy may help minimize lung function decline, hospitalization rate, and the need for oral antibiotics among ... Read more

May 15, 2019May 15, 2019

Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

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With 250 rare diseases newly identified every year, scientists can barely keep up — even as the healthcare system fails millions of Americans whose rare diseases have already been ... Read more

May 9, 2019May 9, 2019

N-acetylcysteine Potentially Beneficial for Bronchiectasis Patients, Trial Shows

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Treatment with N-acetylcysteine, a mucus-dissolving and anti-inflammatory agent, reduces the frequency of acute worsening episodes and improves the quality of life of patients with bronchiectasis, results from a randomized ... Read more

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