Updates

October 17, 2019October 17, 2019
Bronchiectasis Affects More People in UK than Previously Thought, with Number of Cases Rising, Survey Says

The incidence of non-cystic fibrosis bronchiectasis is increasing in the United Kingdom (U.K.), with the number of cases much higher than previously thought, ... Read more
October 10, 2019October 10, 2019
Pregnancy-related Protein Linked to Chest Infections and Bronchiectasis Severity, Study Suggests

A protein associated with pregnancy is linked to disease severity and frequent exacerbations in people with bronchiectasis and chronic chest infections (that are ... Read more
October 3, 2019October 3, 2019
Amoxicillin-Clavulanate Recommended to Treat Non-severe Flare-ups of Bronchiectasis in Children, Trial Shows

The combination of amoxicillin with clavulanate should remain the oral antibiotic of choice to treat non-severe flare-ups of bronchiectasis in children, results of ... Read more
September 27, 2019September 27, 2019
NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC

Next month’s annual conference of the National Organization for Rare Disorders (NORD) in Washington, D.C., couldn’t come at a better time, says Marshall Summar, ... Read more
September 26, 2019September 26, 2019
Study Examines Risk Factors for Bacterial Colonization in Bronchiectasis

Among people with bronchiectasis, those more than 55 years old or who have bronchiectasis as a result of infection, are at an increased ... Read more

News

Long-term Macrolide Treatment Linked to Significant Reduction in Bronchiectasis Exacerbations, Study Shows
September 5, 2019September 5, 2019
Long-term treatment with macrolides — a class of antibiotics — is associated with a ...
News

‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases
September 2, 2019August 30, 2019
Rare diseases deeply affect not only the children who experience them, but also their ...
News

New Distribution Partnerships for SmartVest System Announced
August 29, 2019August 29, 2019
Electromed has entered into new agreements with two home medical equipment distributors to enhance ...
News

At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing
August 28, 2019August 28, 2019
Developing gene therapies for rare diseases is one thing. Creating gene-edited “designer babies” is ...
News

High Incidence of Bronchiectasis Among Children with Severe Asthma, UK Study Found
August 22, 2019August 22, 2019
A high incidence of bronchiectasis was found among children with severe asthma in a study ...
News

Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases
August 19, 2019August 19, 2019
Imagine living your whole life with a painful disease so rare that only 25 ...

Subscribe to our mailing list

Get regular updates delivered to your email box.

Thanks! Please check your email for a confirmation email.

More Studies Needed on Antibiotic Use in Children With Bronchiectasis, Review Finds
August 15, 2019
A lack of data on the use of different antibiotics to treat and/or prevent ...
Frequent Disease Exacerbations Linked to Worse Quality of Life for Australian Bronchiectasis Patients, Study Shows
August 8, 2019August 8, 2019
People with bronchiectasis who experience frequent exacerbations — three or more in the previous ...
Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card
August 2, 2019August 2, 2019
Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate
August 1, 2019
Bronchiectasis Patients Have Worse Quality of Life if Disease is COPD-related and More Severe, Study Says
August 1, 2019August 1, 2019
P. aeruginosa Adapt in Lungs to Make Mucus Harder to Clear, Study Finds
July 25, 2019July 25, 2019

European Initiative Targets Diagnosis, Treatment of Rare Diseases
July 18, 2019July 18, 2019
A new international consortium based in Paris, and funded largely by the 28-member European ...
Life Quality in Bronchiectasis Patients Greatly Affected by Activity Levels, Mental Health and Inflammation, Study Says
July 18, 2019July 18, 2019
SmartVest Treatment Reduces Exacerbations, Antibiotic Use, and Stabilizes Lung Function, Study Shows
July 11, 2019July 11, 2019
World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients
July 4, 2019July 4, 2019

Preclinical Data Supports Development of Inhaled Form of Murepavadin to Fight P. Aeruginosa Infections
June 27, 2019June 27, 2019
A new experimental antibiotic named murepavadin is both safe and effective at fighting bacterial ...
NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala
June 26, 2019June 25, 2019
Eurordis Unveils Integrated-care Initiative for Rare Disease Patients
June 21, 2019June 21, 2019

News

Bronchiectasis Patients Unlikely to Transmit Bacteria to Others Through Coughing, Study Suggests
June 20, 2019June 20, 2019
Although patients with bronchiectasis and chronic obstructive pulmonary disease (COPD) release bacteria when they ...
News

‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy
June 17, 2019June 17, 2019
People with rare diseases know that the right government policies can make a big ...
News

Asthma a Common Cause, Risk Factor for Bronchiectasis in Finland, Registry Study Reveals
June 13, 2019June 13, 2019
Asthma is a common cause and complication of bronchiectasis, triggering the disease in about ...
News

NEATstik Shows Potential as Rapid Test for Chest Infection and Risk of Exacerbations in Bronchiectasis
June 6, 2019June 6, 2019
NEATstik, a test developed by ProAxsis, shows potential as a quick tool for assessing bronchiectasis ...
News

Antibiotics May Improve Quality of Life of Bronchiectasis Patients with High Bacterial Load, Study Suggests
May 31, 2019May 31, 2019
Inhaled antibiotics appear to improve the quality of life of bronchiectasis patients, especially when ...
News

Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries
May 27, 2019May 27, 2019
RaDaR, the catchy new name for the U.S. government-run Rare Diseases Registry Program, aims ...
News

Lung Bacteria Composition Tends to Remains Stable, May Correlate with Lung Function in nCFB, Study Says
May 23, 2019May 23, 2019
The composition of bacteria living inside the lungs of people with non-cystic fibrosis bronchiectasis ...
News

Treatment Algorithm Centered on Chest Physiotherapy May Minimize Lung Function Decline, Study Says
May 17, 2019May 17, 2019
A treatment algorithm centered on the use of high-frequency chest wall oscillation (HFCWO) therapy ...
News

Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns
May 15, 2019May 15, 2019
With 250 rare diseases newly identified every year, scientists can barely keep up — ...
News

N-acetylcysteine Potentially Beneficial for Bronchiectasis Patients, Trial Shows
May 9, 2019May 9, 2019
Treatment with N-acetylcysteine, a mucus-dissolving and anti-inflammatory agent, reduces the frequency of acute worsening ...
News

Incidence of Non-CF Bronchiectasis is Rising in Germany, Study Reports
May 2, 2019May 2, 2019
The incidence of non-cystic fibrosis bronchiectasis is rising in Germany, which necessitates a better ...
News

Bronchiectasis and COPD Patients in US Face High Financial Burden, Study Says
April 25, 2019
The financial burden associated with healthcare costs is relatively high for U.S. patients with ...
News

Nonprofit Group Works to Raise Rare Disease Awareness in India
April 25, 2019April 25, 2019
With an estimated 1.37 billion inhabitants, India will likely surpass China in five years ...
News

Nucala Can Help Manage Symptoms of Severe Eosinophilic Asthma with Bronchiectasis, Pilot Study Shows
April 18, 2019April 18, 2019
Nucala (mepolizumab) can help manage the respiratory symptoms of patients with severe uncontrolled asthma and ...
News

Common Allergens Linked to Poorer Lung Function in Non-CF Bronchiectasis
April 11, 2019April 11, 2019
Patients with non-cystic fibrosis bronchiectasis across the world have high rates of sensitization to airborne ...

April 10, 2017

What a Doctor Wants People to Know About Chronic Illnesses

Social Clips

Having a chronic illness presents many challenges for patients, not only in terms of managing the symptoms they suffer but also having to deal with people’s preconceived ideas about invisible illnesses. MORE: What to expect when living with ... Read more

Subscribe to our mailing list

Pin It on Pinterest