Updates

May 17, 2019May 17, 2019
Treatment Algorithm Centered on Chest Physiotherapy May Minimize Lung Function Decline, Study Says

A treatment algorithm centered on the use of high-frequency chest wall oscillation (HFCWO) therapy may help minimize lung function decline, hospitalization rate, ... Read more
May 15, 2019May 15, 2019
Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

With 250 rare diseases newly identified every year, scientists can barely keep up — even as the healthcare system fails millions of Americans whose ... Read more
May 9, 2019May 9, 2019
N-acetylcysteine Potentially Beneficial for Bronchiectasis Patients, Trial Shows

Treatment with N-acetylcysteine, a mucus-dissolving and anti-inflammatory agent, reduces the frequency of acute worsening episodes and improves the quality of life of patients ... Read more
May 2, 2019May 2, 2019
Incidence of Non-CF Bronchiectasis is Rising in Germany, Study Reports

The incidence of non-cystic fibrosis bronchiectasis is rising in Germany, which necessitates a better understanding of the economic burden of the disease, a ... Read more
April 25, 2019
Bronchiectasis and COPD Patients in US Face High Financial Burden, Study Says

The financial burden associated with healthcare costs is relatively high for U.S. patients with chronic obstructive pulmonary disease (COPD) or bronchiectasis, especially for ... Read more

News

Nonprofit Group Works to Raise Rare Disease Awareness in India
April 25, 2019April 25, 2019
With an estimated 1.37 billion inhabitants, India will likely surpass China in five years ...
News

Nucala Can Help Manage Symptoms of Severe Eosinophilic Asthma with Bronchiectasis, Pilot Study Shows
April 18, 2019April 18, 2019
Nucala (mepolizumab) can help manage the respiratory symptoms of patients with severe uncontrolled asthma and ...
News

Common Allergens Linked to Poorer Lung Function in Non-CF Bronchiectasis
April 11, 2019April 11, 2019
Patients with non-cystic fibrosis bronchiectasis across the world have high rates of sensitization to airborne ...
News

Vitamin D Deficiency Can Predict Severity of Bronchiectasis, Study Says
April 4, 2019April 4, 2019
The majority of patients with bronchiectasis are deficient in vitamin D, a feature that was found ...
News

More than Half of Bronchiectasis Patients Have Chronic Rhinosinusitis, Study Finds
March 28, 2019March 28, 2019
Up to 62 percent of adults with bronchiectasis also have chronic rhinosinusitis (CRS), which ...
News

Bronchiectasis Care is Expensive, But Hospitalizations Significantly Add to Cost, Study Shows
March 21, 2019March 21, 2019
Hospitalization markedly increases the costs of bronchiectasis care and management, especially in patients who ...

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Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn
March 15, 2019March 15, 2019
Madeline Collin, a 24-year-old activist with Gaucher disease, worries that patients like her will ...
New Antibiotic Formulation Better at Controlling Infections in Bronchiectasis
March 14, 2019March 14, 2019
Inhaled antibiotics have been proposed as efficient treatments to reduce bacterial infections in bronchiectasis ...
Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist
March 11, 2019March 11, 2019
Case Report Illustrates Risk of Bronchiectasis in People Not Vaccinated Against Measles
March 7, 2019March 7, 2019
NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research
March 6, 2019March 6, 2019
FDA Maintains Refusal of Aradigm’s Bronchiectasis Bacteria Therapy and Recommends Further Study
February 28, 2019February 28, 2019

WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April
February 25, 2019February 25, 2019
The world’s biggest gathering of rare disease researchers, patient groups, pharmaceutical executives, and government ...
Lower Oxygen Levels During Exercise Is a Risk Factor for Osteoporosis in Non-CF Bronchiectasis, Study Reports
February 21, 2019February 21, 2019
Vienna to Host RARE2019 Meeting on Rare Diseases
February 20, 2019February 20, 2019
Glittre Test Can Help Evaluate Functional Capacity and Activities of Daily Living in Bronchiectasis Patients
February 14, 2019February 14, 2019

Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide
February 11, 2019February 11, 2019
Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities ...
Pulmonary Rehabilitation Program May Improve Physical Activity Levels in Adults with Bronchiectasis
February 7, 2019February 7, 2019
Traction Bronchiectasis Is a Potential Indicator of Poor Prognosis in Acute Eosinophilic Pneumonia, Study Finds
January 31, 2019January 31, 2019

News

Independent Review Supports Aqulmiq in Delaying Flares in NCFBE, Report Says
January 24, 2019January 24, 2019
Treatment with Apulmiq (ciprofloxacin) can delay the first acute respiratory episode in non-cystic fibrosis ...
News

Rare Tracheal Infection with Achromobacter in Bronchiectasis Patient Reported in Case Study
January 17, 2019January 17, 2019
A rare infection of the trachea with the bacteria Achromobacter xylosoxidans deteriorated the respiratory function ...
News

Statins, Mucolytics May Lower Risk of Exacerbations, Death Among BCO Patients, Study Finds
January 10, 2019January 10, 2019
Statins and mucolytics may lower the risk of acute exacerbations and death among patients ...
News

Apulmiq’s Benefits Confirmed in Third-party Evaluation
January 2, 2019January 3, 2019
A third-party evaluation (TPE) confirmed the efficacy of the bronchiectasis treatment candidate Apulmiq found in ...
News

Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish
December 21, 2018December 21, 2018
Cash-strapped governments across the 28-member European Union are struggling to control runaway healthcare expenditures ...
News

Mycobacterium abscessus Gave Rise to Autoimmune Disorder in Bronchiectasis Patient, Report Says
December 20, 2018December 20, 2018
A first case of an autoimmune disorder characterized by inflammation of blood vessels in ...
News

Zambon’s Inhalable Antibiotic for Non-CF Bronchiectasis Gets Fast Track, QIDP Status from FDA
December 13, 2018December 13, 2018
The U.S. Food and Drug Administration (FDA) granted Qualified Infectious Diseases Product (QIDP) and ...
News

‘Vascular Pruning’ Affects Lung Function in Smokers With Bronchiectasis
December 6, 2018December 6, 2018
A recent study comparing computed tomography (CT) scan data found that smokers with bronchiectasis ...
News

Pus in Sputum Associated with Disease-prone Bacteria in Bronchiectasis
November 29, 2018November 29, 2018
The presence of pus (purulence) in sputum samples from bronchiectasis patients is associated with ...
News

Certain Autoantibodies Linked to P. aeruginosa Infection in Bronchiectasis Patients, Study Suggests
November 15, 2018November 15, 2018
Production of autoantibodies against a particular protein called bactericidal/permeability-increased protein (BPI) is strongly associated with chronic ...
News

New Probe Allows Safe, Easy Visualization of Infectious Bacteria in Lungs, Study Shows
November 8, 2018November 8, 2018
A newly developed fluorescent probe allows the detection of infectious bacteria in human airways ...
News

B. bronchiseptica Infection Causes Varied Symptoms in Non-CF Bronchiectasis Patients, Case Series Shows
November 1, 2018November 1, 2018
Infection with the bacterium Bordetella bronchiseptica can have varying symptoms and be difficult to eradicate in ...
News

#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach
October 30, 2018October 30, 2018
With the U.S. midterm elections now less than two weeks away, patient advocacy groups ...
News

Benefits of Sinus Surgery in Bronchiectasis Patients Do Not Extend to Lung Function, Study Suggests
October 25, 2018October 25, 2018
Endoscopic sinus surgery to relieve nasal inflammation in bronchiectasis patients with chronic rhinosinusitis (CRS) ...
News

Incremental Shuttle Walk Test a Reliable Measure of Bronchiectasis Therapy Response, Study Suggests
October 18, 2018October 18, 2018
Improvements in physical ability as seen with the incremental shuttle walk test (ISWT) mirror pulmonary ...

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