Updates

April 18, 2019April 18, 2019
Nucala Can Help Manage Symptoms of Severe Eosinophilic Asthma with Bronchiectasis, Pilot Study Shows

Nucala (mepolizumab) can help manage the respiratory symptoms of patients with severe uncontrolled asthma and diagnosed bronchiectasis, results from a pilot study show. ... Read more
April 11, 2019April 11, 2019
Common Allergens Linked to Poorer Lung Function in Non-CF Bronchiectasis

Patients with non-cystic fibrosis bronchiectasis across the world have high rates of sensitization to airborne allergens, namely house dust mite and the fungus Aspergillus ... Read more
April 4, 2019April 4, 2019
Vitamin D Deficiency Can Predict Severity of Bronchiectasis, Study Says

The majority of patients with bronchiectasis are deficient in vitamin D, a feature that was found to be correlated with bronchiectasis clinical and radiological severity, ... Read more
March 28, 2019March 28, 2019
More than Half of Bronchiectasis Patients Have Chronic Rhinosinusitis, Study Finds

Up to 62 percent of adults with bronchiectasis also have chronic rhinosinusitis (CRS), which is associated with poorer quality of life, a greater ... Read more
March 21, 2019March 21, 2019
Bronchiectasis Care is Expensive, But Hospitalizations Significantly Add to Cost, Study Shows

Hospitalization markedly increases the costs of bronchiectasis care and management, especially in patients who experience flare-ups, a review of published studies shows. The ... Read more

News

Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn
March 15, 2019March 15, 2019
Madeline Collin, a 24-year-old activist with Gaucher disease, worries that patients like her will ...
News

New Antibiotic Formulation Better at Controlling Infections in Bronchiectasis
March 14, 2019March 14, 2019
Inhaled antibiotics have been proposed as efficient treatments to reduce bacterial infections in bronchiectasis ...
News

Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist
March 11, 2019March 11, 2019
With each new advance in medicine comes ethical dilemmas, from fertility treatments and newborn ...
News

Case Report Illustrates Risk of Bronchiectasis in People Not Vaccinated Against Measles
March 7, 2019March 7, 2019
The case of a man whose measles infection as a child was linked to ...
News

NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research
March 6, 2019March 6, 2019
Rare diseases affect about 30 million Americans — roughly the same number as those ...
News

FDA Maintains Refusal of Aradigm’s Bronchiectasis Bacteria Therapy and Recommends Further Study
February 28, 2019February 28, 2019
The U.S. Food and Drug Administration (FDA) has stood by its initial refusal to approve ...

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WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April
February 25, 2019February 25, 2019
The world’s biggest gathering of rare disease researchers, patient groups, pharmaceutical executives, and government ...
Lower Oxygen Levels During Exercise Is a Risk Factor for Osteoporosis in Non-CF Bronchiectasis, Study Reports
February 21, 2019February 21, 2019
Decreased blood oxygen levels during the six-minute walk test (6MWT) is a risk factor ...
Vienna to Host RARE2019 Meeting on Rare Diseases
February 20, 2019February 20, 2019
Glittre Test Can Help Evaluate Functional Capacity and Activities of Daily Living in Bronchiectasis Patients
February 14, 2019February 14, 2019
Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide
February 11, 2019February 11, 2019
Pulmonary Rehabilitation Program May Improve Physical Activity Levels in Adults with Bronchiectasis
February 7, 2019February 7, 2019

Traction Bronchiectasis Is a Potential Indicator of Poor Prognosis in Acute Eosinophilic Pneumonia, Study Finds
January 31, 2019January 31, 2019
A retrospective study of acute eosinophilic pneumonia (AEP) patients found that traction bronchiectasis (TBE) ...
Independent Review Supports Aqulmiq in Delaying Flares in NCFBE, Report Says
January 24, 2019January 24, 2019
Rare Tracheal Infection with Achromobacter in Bronchiectasis Patient Reported in Case Study
January 17, 2019January 17, 2019
Statins, Mucolytics May Lower Risk of Exacerbations, Death Among BCO Patients, Study Finds
January 10, 2019January 10, 2019

Apulmiq’s Benefits Confirmed in Third-party Evaluation
January 2, 2019January 3, 2019
A third-party evaluation (TPE) confirmed the efficacy of the bronchiectasis treatment candidate Apulmiq found in ...
Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish
December 21, 2018December 21, 2018
Mycobacterium abscessus Gave Rise to Autoimmune Disorder in Bronchiectasis Patient, Report Says
December 20, 2018December 20, 2018

News

Zambon’s Inhalable Antibiotic for Non-CF Bronchiectasis Gets Fast Track, QIDP Status from FDA
December 13, 2018December 13, 2018
The U.S. Food and Drug Administration (FDA) granted Qualified Infectious Diseases Product (QIDP) and ...
News

‘Vascular Pruning’ Affects Lung Function in Smokers With Bronchiectasis
December 6, 2018December 6, 2018
A recent study comparing computed tomography (CT) scan data found that smokers with bronchiectasis ...
News

Pus in Sputum Associated with Disease-prone Bacteria in Bronchiectasis
November 29, 2018November 29, 2018
The presence of pus (purulence) in sputum samples from bronchiectasis patients is associated with ...
News

Certain Autoantibodies Linked to P. aeruginosa Infection in Bronchiectasis Patients, Study Suggests
November 15, 2018November 15, 2018
Production of autoantibodies against a particular protein called bactericidal/permeability-increased protein (BPI) is strongly associated with chronic ...
News

New Probe Allows Safe, Easy Visualization of Infectious Bacteria in Lungs, Study Shows
November 8, 2018November 8, 2018
A newly developed fluorescent probe allows the detection of infectious bacteria in human airways ...
News

B. bronchiseptica Infection Causes Varied Symptoms in Non-CF Bronchiectasis Patients, Case Series Shows
November 1, 2018November 1, 2018
Infection with the bacterium Bordetella bronchiseptica can have varying symptoms and be difficult to eradicate in ...
News

#NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach
October 30, 2018October 30, 2018
With the U.S. midterm elections now less than two weeks away, patient advocacy groups ...
News

Benefits of Sinus Surgery in Bronchiectasis Patients Do Not Extend to Lung Function, Study Suggests
October 25, 2018October 25, 2018
Endoscopic sinus surgery to relieve nasal inflammation in bronchiectasis patients with chronic rhinosinusitis (CRS) ...
News

Incremental Shuttle Walk Test a Reliable Measure of Bronchiectasis Therapy Response, Study Suggests
October 18, 2018October 18, 2018
Improvements in physical ability as seen with the incremental shuttle walk test (ISWT) mirror pulmonary ...
News

Concomitant Infection of Pseudomonas aeruginosa and Mycobacteria Worsens Bronchiectasis Symptoms, Study Reports
October 11, 2018October 11, 2018
A Taiwanese study demonstrated that concomitant infection with Pseudomonas aeruginosa and nontuberculous mycobacteria leads to ...
News

Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments
October 9, 2018October 9, 2018
Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced ...
News

Bronchiectasis Patients Less Physically Active Than Healthy Peers, Study Reports
October 4, 2018October 4, 2018
Patients with bronchiectasis are less physically active than their healthy peers, a finding that ...
News

Chronic P. Aeruginosa Infection Greatly Raises Risk of Flares in Non-CF Bronchiectasis, Study Shows
September 27, 2018
People with non-cystic fibrosis (CF) bronchiectasis are at a significantly greater risk of exacerbations if they have ...
News

#NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington
September 21, 2018September 24, 2018
More than 700 medical experts, pharmaceutical executives, patient advocates, and others are expected to ...
News

P. aeruginosa in Airways of Non-CF Bronchiectasis Patients Linked to Inflammation Through Impact on Gene
September 20, 2018September 25, 2018
An abundance of Pseudomonas aeruginosa bacteria in the airways of patients with non-cystic fibrosis ...

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