Updates

June 21, 2019June 21, 2019
Eurordis Unveils Integrated-care Initiative for Rare Disease Patients

Europe’s umbrella organization for 800 rare disease associations has developed a sweeping initiative to help the continent’s 30 million rare disease patients and their ... Read more
June 20, 2019June 20, 2019
Bronchiectasis Patients Unlikely to Transmit Bacteria to Others Through Coughing, Study Suggests

Although patients with bronchiectasis and chronic obstructive pulmonary disease (COPD) release bacteria when they cough, this process does not appear to contribute to ... Read more
June 17, 2019June 17, 2019
‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

People with rare diseases know that the right government policies can make a big difference in the quality of their own lives, and those ... Read more
June 13, 2019June 13, 2019
Asthma a Common Cause, Risk Factor for Bronchiectasis in Finland, Registry Study Reveals

Asthma is a common cause and complication of bronchiectasis, triggering the disease in about one quarter of patients who live in Helsinki, Finland’s ... Read more
June 6, 2019June 6, 2019
NEATstik Shows Potential as Rapid Test for Chest Infection and Risk of Exacerbations in Bronchiectasis

NEATstik, a test developed by ProAxsis, shows potential as a quick tool for assessing bronchiectasis severity, the presence of airway infections, and the risk ... Read more

News

Antibiotics May Improve Quality of Life of Bronchiectasis Patients with High Bacterial Load, Study Suggests
May 31, 2019May 31, 2019
Inhaled antibiotics appear to improve the quality of life of bronchiectasis patients, especially when ...
News

Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries
May 27, 2019May 27, 2019
RaDaR, the catchy new name for the U.S. government-run Rare Diseases Registry Program, aims ...
News

Lung Bacteria Composition Tends to Remains Stable, May Correlate with Lung Function in nCFB, Study Says
May 23, 2019May 23, 2019
The composition of bacteria living inside the lungs of people with non-cystic fibrosis bronchiectasis ...
News

Treatment Algorithm Centered on Chest Physiotherapy May Minimize Lung Function Decline, Study Says
May 17, 2019May 17, 2019
A treatment algorithm centered on the use of high-frequency chest wall oscillation (HFCWO) therapy ...
News

Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns
May 15, 2019May 15, 2019
With 250 rare diseases newly identified every year, scientists can barely keep up — ...
News

N-acetylcysteine Potentially Beneficial for Bronchiectasis Patients, Trial Shows
May 9, 2019May 9, 2019
Treatment with N-acetylcysteine, a mucus-dissolving and anti-inflammatory agent, reduces the frequency of acute worsening ...

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Incidence of Non-CF Bronchiectasis is Rising in Germany, Study Reports
May 2, 2019May 2, 2019
The incidence of non-cystic fibrosis bronchiectasis is rising in Germany, which necessitates a better ...
Bronchiectasis and COPD Patients in US Face High Financial Burden, Study Says
April 25, 2019
The financial burden associated with healthcare costs is relatively high for U.S. patients with ...
Nonprofit Group Works to Raise Rare Disease Awareness in India
April 25, 2019April 25, 2019
Nucala Can Help Manage Symptoms of Severe Eosinophilic Asthma with Bronchiectasis, Pilot Study Shows
April 18, 2019April 18, 2019
Common Allergens Linked to Poorer Lung Function in Non-CF Bronchiectasis
April 11, 2019April 11, 2019
Vitamin D Deficiency Can Predict Severity of Bronchiectasis, Study Says
April 4, 2019April 4, 2019

More than Half of Bronchiectasis Patients Have Chronic Rhinosinusitis, Study Finds
March 28, 2019March 28, 2019
Up to 62 percent of adults with bronchiectasis also have chronic rhinosinusitis (CRS), which ...
Bronchiectasis Care is Expensive, But Hospitalizations Significantly Add to Cost, Study Shows
March 21, 2019March 21, 2019
Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn
March 15, 2019March 15, 2019
New Antibiotic Formulation Better at Controlling Infections in Bronchiectasis
March 14, 2019March 14, 2019

Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist
March 11, 2019March 11, 2019
With each new advance in medicine comes ethical dilemmas, from fertility treatments and newborn ...
Case Report Illustrates Risk of Bronchiectasis in People Not Vaccinated Against Measles
March 7, 2019March 7, 2019
NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research
March 6, 2019March 6, 2019

News

FDA Maintains Refusal of Aradigm’s Bronchiectasis Bacteria Therapy and Recommends Further Study
February 28, 2019February 28, 2019
The U.S. Food and Drug Administration (FDA) has stood by its initial refusal to approve ...
News

WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April
February 25, 2019February 25, 2019
The world’s biggest gathering of rare disease researchers, patient groups, pharmaceutical executives, and government ...
News

Lower Oxygen Levels During Exercise Is a Risk Factor for Osteoporosis in Non-CF Bronchiectasis, Study Reports
February 21, 2019February 21, 2019
Decreased blood oxygen levels during the six-minute walk test (6MWT) is a risk factor ...
News

Vienna to Host RARE2019 Meeting on Rare Diseases
February 20, 2019February 20, 2019
About 100 scientists, researchers, pharmaceutical executives, and others will converge on Austria’s capital city ...
News

Glittre Test Can Help Evaluate Functional Capacity and Activities of Daily Living in Bronchiectasis Patients
February 14, 2019February 14, 2019
The Glittre activities of daily living (ADL) test can help evaluate functional capacity and daily ...
News

Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide
February 11, 2019February 11, 2019
Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities ...
News

Pulmonary Rehabilitation Program May Improve Physical Activity Levels in Adults with Bronchiectasis
February 7, 2019February 7, 2019
A home-based pulmonary rehabilitation program helped to improve the physical activity and overall clinical status ...
News

Traction Bronchiectasis Is a Potential Indicator of Poor Prognosis in Acute Eosinophilic Pneumonia, Study Finds
January 31, 2019January 31, 2019
A retrospective study of acute eosinophilic pneumonia (AEP) patients found that traction bronchiectasis (TBE) ...
News

Independent Review Supports Aqulmiq in Delaying Flares in NCFBE, Report Says
January 24, 2019January 24, 2019
Treatment with Apulmiq (ciprofloxacin) can delay the first acute respiratory episode in non-cystic fibrosis ...
News

Rare Tracheal Infection with Achromobacter in Bronchiectasis Patient Reported in Case Study
January 17, 2019January 17, 2019
A rare infection of the trachea with the bacteria Achromobacter xylosoxidans deteriorated the respiratory function ...
News

Statins, Mucolytics May Lower Risk of Exacerbations, Death Among BCO Patients, Study Finds
January 10, 2019January 10, 2019
Statins and mucolytics may lower the risk of acute exacerbations and death among patients ...
News

Apulmiq’s Benefits Confirmed in Third-party Evaluation
January 2, 2019January 3, 2019
A third-party evaluation (TPE) confirmed the efficacy of the bronchiectasis treatment candidate Apulmiq found in ...
News

Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish
December 21, 2018December 21, 2018
Cash-strapped governments across the 28-member European Union are struggling to control runaway healthcare expenditures ...
News

Mycobacterium abscessus Gave Rise to Autoimmune Disorder in Bronchiectasis Patient, Report Says
December 20, 2018December 20, 2018
A first case of an autoimmune disorder characterized by inflammation of blood vessels in ...
News

Zambon’s Inhalable Antibiotic for Non-CF Bronchiectasis Gets Fast Track, QIDP Status from FDA
December 13, 2018December 13, 2018
The U.S. Food and Drug Administration (FDA) granted Qualified Infectious Diseases Product (QIDP) and ...

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