Updates

September 25, 2020September 25, 2020
Immune Cells Ratio May Be Used as Biomarker of Exacerbations, Study Reports

The neutrophil to lymphocyte ratio (NLR) — a measure of inflammation calculated by dividing the number of different immune cells — can be used ... Read more
September 21, 2020September 21, 2020
Disease Duration, Flare-ups Affect Mental Health of Non-CF Bronchiectasis Patients, Study Finds

People with non-cystic fibrosis (CF) bronchiectasis are at an increased risk for anxiety and depression, and this risk is associated with a higher rate ... Read more
September 18, 2020September 18, 2020
E-cigarette Use Linked to Bronchiectasis in 3 Cases, Report Suggests

Use of electronic cigarettes, or e-cigarettes, is strongly suspected to have led to bronchiectasis in three young patients, according to a recent report. The ... Read more
September 14, 2020September 14, 2020
Brensocatib Significantly Lowers Flare Risk in Non-CF Bronchiectasis, Trial Shows

Treatment with brensocatib significantly and safely extended the time to a first exacerbation and lowered flare rates in people with non-cystic fibrosis bronchiectasis (NCFBE), results ... Read more
September 11, 2020September 11, 2020
Bronchiectasis Aggravates Asthma Outcomes, Review Study Finds

People with asthma who also have bronchiectasis are at greater risk of severe disease and exacerbations, and more likely to be admitted to the ... Read more

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April 10, 2017

What a Doctor Wants People to Know About Chronic Illnesses

Social Clips

Having a chronic illness presents many challenges for patients, not only in terms of managing the symptoms they suffer but also having to deal with people’s preconceived ideas about invisible illnesses. MORE: What to expect when living with bronchiectasis. Dr. ... Read more

Updates

Immune Cells Ratio May Be Used as Biomarker of Exacerbations, Study Reports

Disease Duration, Flare-ups Affect Mental Health of Non-CF Bronchiectasis Patients, Study Finds

E-cigarette Use Linked to Bronchiectasis in 3 Cases, Report Suggests

Brensocatib Significantly Lowers Flare Risk in Non-CF Bronchiectasis, Trial Shows

Bronchiectasis Aggravates Asthma Outcomes, Review Study Finds

Case Study Reports COVID-19 Plus Rare Bacterial Infection in Bronchiectasis Patient

Same But Different Photo Contest Celebrates People With Rare Diseases

Analysis Links Pneumonia With Bronchiectasis to Less Mortality, More Infections

Protein May Help Monitor Inflammation During, After Bronchiectasis Exacerbations

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Inflammatory Biomarkers Linked to More Severe Disease in COPD With Bronchiectasis

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Dry Powder Inhaled Antibiotics Safe, Effective for Bronchiectasis, Study Suggests

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Use of Airway Clearance Techniques Rises With Flares and Infections

New Streaming Channel Showcases Rare Disease Films

Vest Therapy Lowers Risk of Hospitalization in Non-CF Bronchiectasis, Study Says

CHMP Recommends Arikayce for MAC Lung Infections in Europe

Rare Disease Communities Invited to Submit Works to 2020 Rare Artist Contest

Inhaled Antibiotics Lower Flare Risk in Non-CF Bronchiectasis, But Have Limits

Low Bacterial Diversity in Lungs Tied to Damaging Enzyme in Bronchiectasis

Smoking, Respiratory Issues, Older Age Raise Hospital Costs, Chinese Study Finds

Causes, Symptoms of Non-CF Bronchiectasis Have Changed in Children, Study Suggests

Greater Difficulty in Breathing Linked to More Severe Bronchiectasis, Study Finds

Flare Risk Drops if Brensocatib Clears Key Protein from NCFBE Patient Sputum, Trial Finds

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Progenitor Cell Transplant May Safely Stop Progression in Bronchiectasis

Renovion Raises $8.1M to Advance ARINA-1 Nebulizer Therapy

Brensocatib Named FDA Breakthrough Therapy for Non-CF Bronchiectasis

Asthma-associated Bronchiectasis Becoming More Frequent in Spain, Study Finds

Coalition Will Address Racial Disparities in Rare Disease Communities

Cardiovascular Disease Raises Risk of Bronchiectasis Exacerbations, Study Reports

UK Survey: Reduced Pollution Due to COVID-19 Benefits People with Lung Conditions

Most Bronchiectasis Patients in Europe Not Tested for NTM Infection as Recommended, Survey Suggests

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Antibiotic Cayston Effective for Some Bronchiectasis Symptoms but Not All, Study Says

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Immune Cells Ratio May Be Used as Biomarker of Exacerbations, Study Reports

Disease Duration, Flare-ups Affect Mental Health of Non-CF Bronchiectasis Patients, Study Finds

E-cigarette Use Linked to Bronchiectasis in 3 Cases, Report Suggests

Brensocatib Significantly Lowers Flare Risk in Non-CF Bronchiectasis, Trial Shows

Bronchiectasis Aggravates Asthma Outcomes, Review Study Finds

Case Study Reports COVID-19 Plus Rare Bacterial Infection in Bronchiectasis Patient

Same But Different Photo Contest Celebrates People With Rare Diseases

Analysis Links Pneumonia With Bronchiectasis to Less Mortality, More Infections

Protein May Help Monitor Inflammation During, After Bronchiectasis Exacerbations

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Inflammatory Biomarkers Linked to More Severe Disease in COPD With Bronchiectasis

Subscribe to our mailing list

Dry Powder Inhaled Antibiotics Safe, Effective for Bronchiectasis, Study Suggests

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Use of Airway Clearance Techniques Rises With Flares and Infections

New Streaming Channel Showcases Rare Disease Films

Vest Therapy Lowers Risk of Hospitalization in Non-CF Bronchiectasis, Study Says

CHMP Recommends Arikayce for MAC Lung Infections in Europe

Rare Disease Communities Invited to Submit Works to 2020 Rare Artist Contest

Inhaled Antibiotics Lower Flare Risk in Non-CF Bronchiectasis, But Have Limits

Low Bacterial Diversity in Lungs Tied to Damaging Enzyme in Bronchiectasis

Smoking, Respiratory Issues, Older Age Raise Hospital Costs, Chinese Study Finds

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Causes, Symptoms of Non-CF Bronchiectasis Have Changed in Children, Study Suggests

Greater Difficulty in Breathing Linked to More Severe Bronchiectasis, Study Finds

Flare Risk Drops if Brensocatib Clears Key Protein from NCFBE Patient Sputum, Trial Finds

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Progenitor Cell Transplant May Safely Stop Progression in Bronchiectasis

Renovion Raises $8.1M to Advance ARINA-1 Nebulizer Therapy

Brensocatib Named FDA Breakthrough Therapy for Non-CF Bronchiectasis

Asthma-associated Bronchiectasis Becoming More Frequent in Spain, Study Finds

Coalition Will Address Racial Disparities in Rare Disease Communities

Cardiovascular Disease Raises Risk of Bronchiectasis Exacerbations, Study Reports

UK Survey: Reduced Pollution Due to COVID-19 Benefits People with Lung Conditions

Most Bronchiectasis Patients in Europe Not Tested for NTM Infection as Recommended, Survey Suggests

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Video Games Connect Chronically Ill Children Isolated at Home, Hospital

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

Antibiotic Cayston Effective for Some Bronchiectasis Symptoms but Not All, Study Says

Pin It on Pinterest