News Bronchiectasis Patients Unlikely to Transmit Bacteria to Others Through Coughing, Study Suggests

News ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

News Asthma a Common Cause, Risk Factor for Bronchiectasis in Finland, Registry Study Reveals

News NEATstik Shows Potential as Rapid Test for Chest Infection and Risk of Exacerbations in Bronchiectasis

News Antibiotics May Improve Quality of Life of Bronchiectasis Patients with High Bacterial Load, Study Suggests

News Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

News Lung Bacteria Composition Tends to Remains Stable, May Correlate with Lung Function in nCFB, Study Says

News Treatment Algorithm Centered on Chest Physiotherapy May Minimize Lung Function Decline, Study Says

News Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

News N-acetylcysteine Potentially Beneficial for Bronchiectasis Patients, Trial Shows

News Incidence of Non-CF Bronchiectasis is Rising in Germany, Study Reports

News Bronchiectasis and COPD Patients in US Face High Financial Burden, Study Says

News Nonprofit Group Works to Raise Rare Disease Awareness in India

News Nucala Can Help Manage Symptoms of Severe Eosinophilic Asthma with Bronchiectasis, Pilot Study Shows

News Common Allergens Linked to Poorer Lung Function in Non-CF Bronchiectasis

News Vitamin D Deficiency Can Predict Severity of Bronchiectasis, Study Says

News More than Half of Bronchiectasis Patients Have Chronic Rhinosinusitis, Study Finds

News Bronchiectasis Care is Expensive, But Hospitalizations Significantly Add to Cost, Study Shows

News Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn

News New Antibiotic Formulation Better at Controlling Infections in Bronchiectasis

News Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

News Case Report Illustrates Risk of Bronchiectasis in People Not Vaccinated Against Measles

News NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

News FDA Maintains Refusal of Aradigm’s Bronchiectasis Bacteria Therapy and Recommends Further Study

News WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April

News Lower Oxygen Levels During Exercise Is a Risk Factor for Osteoporosis in Non-CF Bronchiectasis, Study Reports

News Vienna to Host RARE2019 Meeting on Rare Diseases

News Glittre Test Can Help Evaluate Functional Capacity and Activities of Daily Living in Bronchiectasis Patients

News Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

News Pulmonary Rehabilitation Program May Improve Physical Activity Levels in Adults with Bronchiectasis

News Traction Bronchiectasis Is a Potential Indicator of Poor Prognosis in Acute Eosinophilic Pneumonia, Study Finds

News Independent Review Supports Aqulmiq in Delaying Flares in NCFBE, Report Says

News Rare Tracheal Infection with Achromobacter in Bronchiectasis Patient Reported in Case Study

News Statins, Mucolytics May Lower Risk of Exacerbations, Death Among BCO Patients, Study Finds

News Apulmiq’s Benefits Confirmed in Third-party Evaluation

News Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish

News Mycobacterium abscessus Gave Rise to Autoimmune Disorder in Bronchiectasis Patient, Report Says

News Zambon’s Inhalable Antibiotic for Non-CF Bronchiectasis Gets Fast Track, QIDP Status from FDA

News ‘Vascular Pruning’ Affects Lung Function in Smokers With Bronchiectasis

News Pus in Sputum Associated with Disease-prone Bacteria in Bronchiectasis

News Certain Autoantibodies Linked to P. aeruginosa Infection in Bronchiectasis Patients, Study Suggests

News New Probe Allows Safe, Easy Visualization of Infectious Bacteria in Lungs, Study Shows

News B. bronchiseptica Infection Causes Varied Symptoms in Non-CF Bronchiectasis Patients, Case Series Shows

News #NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach

News Benefits of Sinus Surgery in Bronchiectasis Patients Do Not Extend to Lung Function, Study Suggests

News Incremental Shuttle Walk Test a Reliable Measure of Bronchiectasis Therapy Response, Study Suggests

News Concomitant Infection of Pseudomonas aeruginosa and Mycobacteria Worsens Bronchiectasis Symptoms, Study Reports

News Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments

News Bronchiectasis Patients Less Physically Active Than Healthy Peers, Study Reports

News Chronic P. Aeruginosa Infection Greatly Raises Risk of Flares in Non-CF Bronchiectasis, Study Shows

News #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington

News P. aeruginosa in Airways of Non-CF Bronchiectasis Patients Linked to Inflammation Through Impact on Gene

News Azithromycin Better at Preventing Bronchiectasis Worsening Than Other Antiobiotics, Study Reports

News Changes in Composition of Airway Bacteria Evident in Bronchiectasis Patients, Study Reports

News Half of Bronchiectasis Patients in U.S. Also Have COPD, Large Study Shows

News SmartVest Use Linked to Fewer Pulmonary Exacerbations, Hospitalizations in Bronchiectasis Patients, Study Shows

News Airway Clearance Vests Don’t Operate by Increasing Airflow Bias in the Lungs, Study Shows

News Hyaluronic Acid Boosts Tolerance to Inhaled HS Therapy in Bronchiectasis Patients, Study Reports

News Air Pollution Worsens Bronchiectasis, European Study Confirms

News Gene Mutations Linked to Other Lung Diseases May Contribute to Bronchiectasis, Study Suggests

News Bronchiectasis More Common in COPD Patients with Emphysema, Study Reports

News P. aeruginosa Infection Differs Between Cystic Fibrosis and Non-CF Bronchiectasis, Study Shows

News Long-term Antibiotic Use May Work to Reduce Flares in Bronchiecstasis Patients, Study Says

News Long-term Erythromycin Use Has Modest Effect on Normal Bacteria in Upper Airways, Study Finds

News Life Quality Questionnaires Given Bronchiectasis Patients Miss the Mark, Study Finds

News Impaired Bacterial Death by Neutrophils May Explain Chronic Bronchiectasis Infections, Study Suggests

News Lung Transplant Can Benefit Patients with Severe Bronchiectasis, Study Finds

News US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases

News Bronchiectasis in COPD Patients Carries Higher Risk of Acute Flares and Other Respiratory Problems, Study Shows

News #ERDC2018 – When Treating Rare Disease Patients, Don’t Overlook Quality of Life, Panel Urges

News Severity of Bronchiectasis Linked to ‘Air Trapping’ in COPD Patient Lungs in Study

News ‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35

News #ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say

News SmartVest System Leads to Long-term Benefits for Bronchiectasis Patients, Study Shows

News International Biophysics’ AffloVest Airway Clearance Vest Awarded New US Patents

News #ECRD2018 – Patient Access and Collaboration Focus of Eurordis Meeting May 10-12

News Bronchiectasis Associated with Acute COPD Exacerbations, Study Shows

News Insmed Research Award Created for Non-Tuberculosis Mycobacteria Lung Disease Projects

News NIH Agency Pioneers Collaborative Research into Rare Diseases

News Severe Asthma Patients with Bronchiectasis at Increased Risk of Hospitalization, Other Issues, Study Finds

News European Regulators Agree to Review Aradigm’s Bronchiectasis Bacteria Therapy

News Bronchiectasis Patients with P. Aeruginosa Show Worse Lung Function, Lower Quality of Life in Study

News New Scoring System Helps Predict Bronchiectasis in Patients with Uncontrolled Asthma, Study Shows

News Airway Abnormality, Immunodeficiency Are Key Causes of Non-CF Bronchiectasis in Turkey, Study Finds

News Genome Sequencing and Its Clinical Potential Focus of NYC Rare Disease Day Event

News ‘A Disease May Be Rare, Hope Should Never Be,’ Says Boy with SMARD at Connecticut Rare Disease Day Event

News Aradigm Asks EU to Approve Linhaliq for Bronchiectasis Patients’ Bacterial Infections

News Rare Disease Groups Welcome FDA’s Embrace of ‘Real World’ Data in Clinical Trials

News US Lawmakers Urge Bipartisan Support for Rare Disease Research, Patients’ Needs

News Bronchiectasis Increases COPD Patients’ Risk of Enlarged Pulmonary Artery, Study Finds

News Retrophin, Horizon Donate $3M Each to Rare Disease Institute at Children’s National

News Looking for Component of a Fungus Is Good Way to Detect It in Airways, Study Reports

News BioNews to Cover 3 Rare Disease Day Events, Including NIH Conference

News Investigational Imaging Technology Allows Deep Look at Lungs, Quickly Detecting Bacteria

News Patient Advocacy Groups Worldwide Plan Events to Mark Rare Disease Day, Feb. 28

News Stem Cell Transplants Rejuvenate Chinese Bronchiectasis Patients’ Damaged Lungs

News Rare Disease Groups, Patients Differ on ‘Right to Try’ Bill Before US Congress

News S. aureus Infection Not Strongly Linked to Decline in Bronchiectasis Patients, Study Reports

News NORD Fundraiser Sets 7,000-Mile ‘Bike, Run or Walk’ Goal for 7,000 Rare Diseases

News Aradigm’s Linhaliq NDA for Non-CF Bronchiectasis Fails to Get FDA Approval