Updates

October 23, 2020October 23, 2020
Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like the option of continuing its ... Read more
October 19, 2020October 19, 2020
Bronchiectasis Could Be Diagnosis for Children With Persistent Wet Cough, Case Report Says

Although rare in children, bronchiectasis should still be considered in the differential diagnosis of young patients with persistent wet or productive cough, a case ... Read more
October 16, 2020October 16, 2020
Sit-to-stand Test Ably Captures Exercise Capacity of Children, Study Finds

The 30-second sit-to-stand test is a valid alternative to the traditional six-minute walk test in measuring the exercise capacity of children with bronchiectasis, a ... Read more
October 12, 2020October 12, 2020
Symptoms of Flares Distinct for Viruses and Bacteria, Study Finds

Although the presence of virus or bacteria, or their combination, is associated with acute exacerbations in bronchiectasis patients, each of these microbes is linked to differing symptoms, ... Read more
October 9, 2020October 9, 2020
Patients With Bronchiectasis Linked to Tuberculosis May Develop More Severe Disease

People who develop bronchiectasis after contracting tuberculosis tend to have a more severe form of the disease than those in whom bronchiectasis developed from ... Read more

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April 10, 2017

What a Doctor Wants People to Know About Chronic Illnesses

Social Clips

Having a chronic illness presents many challenges for patients, not only in terms of managing the symptoms they suffer but also having to deal with people’s preconceived ideas about invisible illnesses. MORE: What to expect when living with bronchiectasis. Dr. ... Read more

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

Bronchiectasis Could Be Diagnosis for Children With Persistent Wet Cough, Case Report Says

Sit-to-stand Test Ably Captures Exercise Capacity of Children, Study Finds

Symptoms of Flares Distinct for Viruses and Bacteria, Study Finds

Patients With Bronchiectasis Linked to Tuberculosis May Develop More Severe Disease

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Phase 3 Trial Testing Brensocatib for Bronchiectasis Set to Start Soon

Mild, Severe Bronchiectasis Linked to Different Airway Bacteria, Study Finds

Immune Cells Ratio May Be Used as Biomarker of Exacerbations, Study Reports

Disease Duration, Flare-ups Affect Mental Health of Non-CF Bronchiectasis Patients, Study Finds

E-cigarette Use Linked to Bronchiectasis in 3 Cases, Report Suggests

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Brensocatib Significantly Lowers Flare Risk in Non-CF Bronchiectasis, Trial Shows

Bronchiectasis Aggravates Asthma Outcomes, Review Study Finds

Case Study Reports COVID-19 Plus Rare Bacterial Infection in Bronchiectasis Patient

Same But Different Photo Contest Celebrates People With Rare Diseases

Analysis Links Pneumonia With Bronchiectasis to Less Mortality, More Infections

Protein May Help Monitor Inflammation During, After Bronchiectasis Exacerbations

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

Inflammatory Biomarkers Linked to More Severe Disease in COPD With Bronchiectasis

Dry Powder Inhaled Antibiotics Safe, Effective for Bronchiectasis, Study Suggests

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Use of Airway Clearance Techniques Rises With Flares and Infections

New Streaming Channel Showcases Rare Disease Films

Vest Therapy Lowers Risk of Hospitalization in Non-CF Bronchiectasis, Study Says

CHMP Recommends Arikayce for MAC Lung Infections in Europe

Rare Disease Communities Invited to Submit Works to 2020 Rare Artist Contest

Inhaled Antibiotics Lower Flare Risk in Non-CF Bronchiectasis, But Have Limits

Low Bacterial Diversity in Lungs Tied to Damaging Enzyme in Bronchiectasis

Smoking, Respiratory Issues, Older Age Raise Hospital Costs, Chinese Study Finds

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Causes, Symptoms of Non-CF Bronchiectasis Have Changed in Children, Study Suggests

Greater Difficulty in Breathing Linked to More Severe Bronchiectasis, Study Finds

Flare Risk Drops if Brensocatib Clears Key Protein from NCFBE Patient Sputum, Trial Finds

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Progenitor Cell Transplant May Safely Stop Progression in Bronchiectasis

Renovion Raises $8.1M to Advance ARINA-1 Nebulizer Therapy

Brensocatib Named FDA Breakthrough Therapy for Non-CF Bronchiectasis

Asthma-associated Bronchiectasis Becoming More Frequent in Spain, Study Finds

Coalition Will Address Racial Disparities in Rare Disease Communities

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