News Diet Suggestions to Support Health, Quality of Life of Bronchiectasis Patients: A Nutritionist’s View

News Bone Frailty High Among Bronchiectasis Patients, Study Suggests

News Alaxia Joins iABC Consortium to Accelerate Development of ALX-009, Its Lead Antimicrobial Agent

News Inhaled Ciprofloxacin May Help Prevent Bronchiectasis Exacerbation, but More Studies are Needed, Review Suggests

News Bronchiectasis Affects More People in UK than Previously Thought, with Number of Cases Rising, Survey Says

News Pregnancy-related Protein Linked to Chest Infections and Bronchiectasis Severity, Study Suggests

News Amoxicillin-Clavulanate Recommended to Treat Non-severe Flare-ups of Bronchiectasis in Children, Trial Shows

News NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC

News Study Examines Risk Factors for Bacterial Colonization in Bronchiectasis

News Long-term Macrolide Treatment Linked to Significant Reduction in Bronchiectasis Exacerbations, Study Shows

News ‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases

News New Distribution Partnerships for SmartVest System Announced

News At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing

News High Incidence of Bronchiectasis Among Children with Severe Asthma, UK Study Found

News Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

News More Studies Needed on Antibiotic Use in Children With Bronchiectasis, Review Finds

News Frequent Disease Exacerbations Linked to Worse Quality of Life for Australian Bronchiectasis Patients, Study Shows

News Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

News Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate

News Bronchiectasis Patients Have Worse Quality of Life if Disease is COPD-related and More Severe, Study Says

News P. aeruginosa Adapt in Lungs to Make Mucus Harder to Clear, Study Finds

News European Initiative Targets Diagnosis, Treatment of Rare Diseases

News Life Quality in Bronchiectasis Patients Greatly Affected by Activity Levels, Mental Health and Inflammation, Study Says

News SmartVest Treatment Reduces Exacerbations, Antibiotic Use, and Stabilizes Lung Function, Study Shows

News World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients

News Preclinical Data Supports Development of Inhaled Form of Murepavadin to Fight P. Aeruginosa Infections

News NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala

News Eurordis Unveils Integrated-care Initiative for Rare Disease Patients

News Bronchiectasis Patients Unlikely to Transmit Bacteria to Others Through Coughing, Study Suggests

News ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

News Asthma a Common Cause, Risk Factor for Bronchiectasis in Finland, Registry Study Reveals

News NEATstik Shows Potential as Rapid Test for Chest Infection and Risk of Exacerbations in Bronchiectasis

News Antibiotics May Improve Quality of Life of Bronchiectasis Patients with High Bacterial Load, Study Suggests

News Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

News Lung Bacteria Composition Tends to Remains Stable, May Correlate with Lung Function in nCFB, Study Says

News Treatment Algorithm Centered on Chest Physiotherapy May Minimize Lung Function Decline, Study Says

News Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

News N-acetylcysteine Potentially Beneficial for Bronchiectasis Patients, Trial Shows

News Incidence of Non-CF Bronchiectasis is Rising in Germany, Study Reports

News Bronchiectasis and COPD Patients in US Face High Financial Burden, Study Says

News Nonprofit Group Works to Raise Rare Disease Awareness in India

News Nucala Can Help Manage Symptoms of Severe Eosinophilic Asthma with Bronchiectasis, Pilot Study Shows

News Common Allergens Linked to Poorer Lung Function in Non-CF Bronchiectasis

News Vitamin D Deficiency Can Predict Severity of Bronchiectasis, Study Says

News More than Half of Bronchiectasis Patients Have Chronic Rhinosinusitis, Study Finds

News Bronchiectasis Care is Expensive, But Hospitalizations Significantly Add to Cost, Study Shows

News Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn

News New Antibiotic Formulation Better at Controlling Infections in Bronchiectasis

News Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

News Case Report Illustrates Risk of Bronchiectasis in People Not Vaccinated Against Measles

News NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

News FDA Maintains Refusal of Aradigm’s Bronchiectasis Bacteria Therapy and Recommends Further Study

News WODC 2019 Organizers Expect 1,200 to Attend Rare Disease Conference in April

News Lower Oxygen Levels During Exercise Is a Risk Factor for Osteoporosis in Non-CF Bronchiectasis, Study Reports

News Vienna to Host RARE2019 Meeting on Rare Diseases

News Glittre Test Can Help Evaluate Functional Capacity and Activities of Daily Living in Bronchiectasis Patients

News Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide

News Pulmonary Rehabilitation Program May Improve Physical Activity Levels in Adults with Bronchiectasis

News Traction Bronchiectasis Is a Potential Indicator of Poor Prognosis in Acute Eosinophilic Pneumonia, Study Finds

News Independent Review Supports Aqulmiq in Delaying Flares in NCFBE, Report Says

News Rare Tracheal Infection with Achromobacter in Bronchiectasis Patient Reported in Case Study

News Statins, Mucolytics May Lower Risk of Exacerbations, Death Among BCO Patients, Study Finds

News Apulmiq’s Benefits Confirmed in Third-party Evaluation

News Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish

News Mycobacterium abscessus Gave Rise to Autoimmune Disorder in Bronchiectasis Patient, Report Says

News Zambon’s Inhalable Antibiotic for Non-CF Bronchiectasis Gets Fast Track, QIDP Status from FDA

News ‘Vascular Pruning’ Affects Lung Function in Smokers With Bronchiectasis

News Pus in Sputum Associated with Disease-prone Bacteria in Bronchiectasis

News Certain Autoantibodies Linked to P. aeruginosa Infection in Bronchiectasis Patients, Study Suggests

News New Probe Allows Safe, Easy Visualization of Infectious Bacteria in Lungs, Study Shows

News B. bronchiseptica Infection Causes Varied Symptoms in Non-CF Bronchiectasis Patients, Case Series Shows

News #NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach

News Benefits of Sinus Surgery in Bronchiectasis Patients Do Not Extend to Lung Function, Study Suggests

News Incremental Shuttle Walk Test a Reliable Measure of Bronchiectasis Therapy Response, Study Suggests

News Concomitant Infection of Pseudomonas aeruginosa and Mycobacteria Worsens Bronchiectasis Symptoms, Study Reports

News Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments

News Bronchiectasis Patients Less Physically Active Than Healthy Peers, Study Reports

News Chronic P. Aeruginosa Infection Greatly Raises Risk of Flares in Non-CF Bronchiectasis, Study Shows

News #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington

News P. aeruginosa in Airways of Non-CF Bronchiectasis Patients Linked to Inflammation Through Impact on Gene

News Azithromycin Better at Preventing Bronchiectasis Worsening Than Other Antiobiotics, Study Reports

News Changes in Composition of Airway Bacteria Evident in Bronchiectasis Patients, Study Reports

News Half of Bronchiectasis Patients in U.S. Also Have COPD, Large Study Shows

News SmartVest Use Linked to Fewer Pulmonary Exacerbations, Hospitalizations in Bronchiectasis Patients, Study Shows

News Airway Clearance Vests Don’t Operate by Increasing Airflow Bias in the Lungs, Study Shows

News Hyaluronic Acid Boosts Tolerance to Inhaled HS Therapy in Bronchiectasis Patients, Study Reports

News Air Pollution Worsens Bronchiectasis, European Study Confirms

News Gene Mutations Linked to Other Lung Diseases May Contribute to Bronchiectasis, Study Suggests

News Bronchiectasis More Common in COPD Patients with Emphysema, Study Reports

News P. aeruginosa Infection Differs Between Cystic Fibrosis and Non-CF Bronchiectasis, Study Shows

News Long-term Antibiotic Use May Work to Reduce Flares in Bronchiecstasis Patients, Study Says

News Long-term Erythromycin Use Has Modest Effect on Normal Bacteria in Upper Airways, Study Finds

News Life Quality Questionnaires Given Bronchiectasis Patients Miss the Mark, Study Finds

News Impaired Bacterial Death by Neutrophils May Explain Chronic Bronchiectasis Infections, Study Suggests

News Lung Transplant Can Benefit Patients with Severe Bronchiectasis, Study Finds

News US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases

News Bronchiectasis in COPD Patients Carries Higher Risk of Acute Flares and Other Respiratory Problems, Study Shows

News #ERDC2018 – When Treating Rare Disease Patients, Don’t Overlook Quality of Life, Panel Urges

News Severity of Bronchiectasis Linked to ‘Air Trapping’ in COPD Patient Lungs in Study

News ‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35