News

April 27, 2020April 27, 2020

Brensocatib, Potential Bronchiectasis Therapy, to Enter COVID-19 Trial

News

Brensocatib, an oral investigational therapy being developed to treat bronchiectasis, will be tested in people with a severe COVID-19 infection in an upcoming clinical trial, Insmed, its developer, announced. The trial, ... Read more

April 23, 2020April 23, 2020

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

News, syndicated

The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community who are affected by the COVID-19 pandemic in the U.S. Called ... Read more

April 20, 2020April 20, 2020

NTMir Opens Website to Educate Patients About Bronchiectasis, NTM

News

The nonprofit NTM Info & Research (NTMir) has launched a companion website that provides extensive insight into bronchiectasis and related infections, empowering people with the condition to participate in their ... Read more

April 13, 2020April 13, 2020

Bronchiectasis in HIV Patients Can Be Misdiagnosed, Poorly Treated

News

People with bronchiectasis who also have human immunodeficiency virus (HIV) are often misdiagnosed, rarely referred to lung specialists, and not offered bronchodilator therapies, a small series of reports covering 14 patients found. ... Read more

April 8, 2020April 9, 2020

NORD’s Advice on COVID-19: You’re Stronger Than You Think

News, syndicated

First, the bad news: If you’re one of the 30 million or so Americans with a rare disease, you probably have lower immunity to the novel coronavirus than most people. ... Read more

April 6, 2020April 6, 2020

Bubble-PEP Effective at Clearing Airways in Bronchiectasis, Study Reports

News

Bubble‐positive expiratory pressure, a type of airway clearance technique (ACT), could be effective in clearing sputum from the airways of people with stable bronchiectasis, a small study reports. The study, “Bubble‐positive ... Read more

March 31, 2020March 31, 2020

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

News

The Living Rare, Living Stronger Patient and Family Forum, originally set for May 14–16 in Cleveland, Ohio, has been postponed until July 18–20 because of the coronavirus disease COVID-19 pandemic. The ... Read more

March 23, 2020March 24, 2020

Mobile App for SmartVest System Available for Patients’ Use

News

Electromed’s SmartVest can now be managed using a smartphone or tablet application called the SmartVest Connect app, the company reported. The app connects to the SmartVest on smartphones or tablets via ... Read more

March 20, 2020March 20, 2020

Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19

News

Even with the coronavirus pandemic ravaging Europe and much of the world, patient advocate Lucia Monaco, PhD, of Italy remains confident that the Paris-based nonprofit she chairs will see the ... Read more

March 16, 2020March 16, 2020

Molgradex Stops Bacteria in Bronchiectasis Patients with Lung Infections, Trial Shows

News

Treatment with inhaled therapy Molgradex (molgramostim) stopped the growth of nontuberculous mycobacteria (NTM) in the sputum of bronchiectasis patients with chronic bacterial lung infections, according to topline results from a ... Read more