News

March 12, 2020March 12, 2020

Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds

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The number of treatments for children with rare diseases has grown over the past decade, according to a new study. However, despite the increase, nearly 7,000 rare diseases are still lacking ... Read more

March 9, 2020March 9, 2020

Air Pollution Raises Risk of Bronchiectasis-related Hospitalizations in Iran, Study Finds

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Higher levels of air pollutants increase the risk of hospitalizations for lung-associated conditions, including bronchiectasis, asthma, and chronic obstructive pulmonary disease (COPD), an Iranian study has found. The study, “Acute ... Read more

March 5, 2020March 5, 2020

Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare

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In recognition of Rare Disease Day Feb. 29, BioNews Services launched a social media campaign last month asking patients to describe what makes them rare. Running Feb. 7–29, the #WhatMakesMeRare ... Read more

March 3, 2020March 3, 2020

Elsevier Opens Books, Review Articles to Rare Disease Researchers Starting Feb. 29

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Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will be available free-of-charge from Elsevier. The offer runs through April 30, and ... Read more

February 26, 2020February 26, 2020

Advice on Starting Nonprofit Groups for Rare and Other Diseases Focus of NORD Webinar

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Starting a 501(c)(3) tax-exempt nonprofit isn’t easy, but the National Organization for Rare Disorders gave a few tips for those looking to begin the complex process in its Feb. 20 ... Read more

February 20, 2020February 21, 2020

Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

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An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening awareness about rare diseases and the ... Read more

February 20, 2020February 20, 2020

Mutations in Protein-Coding NEK10 Gene Can Compromise Mucus Clearance and Lead to Bronchiectasis, Study Finds

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Mutations in a protein-coding gene called NEK10 can affect the structure and function of cilia — small eyelash-like projections that help move mucus through the airways — compromising mucus clearance ... Read more

January 23, 2020January 23, 2020

HTLV-1 Infection Linked to Bronchiectasis in Indigenous Adults in Central Australia

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Infection with the human T-cell leukemia virus type 1 (HTLV-1) was identified as a risk factor for bronchiectasis, and one previously unknown, among indigenous adults in central Australia, a case-controlled study ... Read more

January 16, 2020January 16, 2020

Bronchiectasis Common in COPD Patients with Frequent Flares and Hospitalizations, Study Finds

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People with moderate-to-severe chronic obstructive pulmonary disease (COPD) often develop bronchiectasis, particularly those with a long disease history or flares that lead to at least once hospitalization each year, a study ... Read more

January 9, 2020January 9, 2020

Chronic Rhinosinusitis Prevalent in US Patients with Bronchiectasis, Study Reports

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Chronic rhinosinusitis (CRS) is prevalent among U.S. patients with bronchiectasis, and is associated with several other conditions, including asthma, allergic rhinitis, gastroesophageal reflux disease (GERD), and antibody deficiency, a study ... Read more