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April 11, 2019April 11, 2019

Common Allergens Linked to Poorer Lung Function in Non-CF Bronchiectasis

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Patients with non-cystic fibrosis bronchiectasis across the world have high rates of sensitization to airborne allergens, namely house dust mite and the fungus Aspergillus fumigatus, a new study shows. As allergens ... Read more

April 4, 2019April 4, 2019

Vitamin D Deficiency Can Predict Severity of Bronchiectasis, Study Says

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The majority of patients with bronchiectasis are deficient in vitamin D, a feature that was found to be correlated with bronchiectasis clinical and radiological severity, a study shows. The study, “Vitamin D and ... Read more

March 28, 2019March 28, 2019

More than Half of Bronchiectasis Patients Have Chronic Rhinosinusitis, Study Finds

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Up to 62 percent of adults with bronchiectasis also have chronic rhinosinusitis (CRS), which is associated with poorer quality of life, a greater degree of disease severity, and more extensive ... Read more

March 21, 2019March 21, 2019

Bronchiectasis Care is Expensive, But Hospitalizations Significantly Add to Cost, Study Shows

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Hospitalization markedly increases the costs of bronchiectasis care and management, especially in patients who experience flare-ups, a review of published studies shows. The study with that finding, “The economic burden ... Read more

March 15, 2019March 15, 2019

Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn

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Madeline Collin, a 24-year-old activist with Gaucher disease, worries that patients like her will suffer deeply if Britain leaves the European Union (EU), as scheduled, at the end of this ... Read more

March 14, 2019March 14, 2019

New Antibiotic Formulation Better at Controlling Infections in Bronchiectasis

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Inhaled antibiotics have been proposed as efficient treatments to reduce bacterial infections in bronchiectasis patients. Now researchers have shown that a new formulation of antibiotics using nanoparticles, called nanoplex, as ... Read more

March 11, 2019March 11, 2019

Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

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With each new advance in medicine comes ethical dilemmas, from fertility treatments and newborn screening, to vaccinations, gene therapies and euthanasia. But rare diseases and the expensive therapies needed to ... Read more

March 7, 2019March 7, 2019

Case Report Illustrates Risk of Bronchiectasis in People Not Vaccinated Against Measles

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The case of a man whose measles infection as a child was linked to his later development of bronchiectasis draws attention to the risk of the bronchiectasis due to fewer vaccinations against ... Read more

March 6, 2019March 6, 2019

NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

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Rare diseases affect about 30 million Americans — roughly the same number as those with type 2 diabetes. Yet only 5 percent of the estimated 7,000 rare diseases known to ... Read more

February 28, 2019February 28, 2019

FDA Maintains Refusal of Aradigm’s Bronchiectasis Bacteria Therapy and Recommends Further Study

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The U.S. Food and Drug Administration (FDA) has stood by its initial refusal to approve Apulmiq for the treatment of non-cystic fibrosis bronchiectasis (NCFBE) associated with chronic Pseudomonas aeruginosa lung infection. The agency recommended ... Read more