News

October 23, 2020October 23, 2020

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

News, syndicated

A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience positive, and many would like the option of continuing its use in future appointments, a series ... Read more

October 19, 2020October 19, 2020

Bronchiectasis Could Be Diagnosis for Children With Persistent Wet Cough, Case Report Says

News

Although rare in children, bronchiectasis should still be considered in the differential diagnosis of young patients with persistent wet or productive cough, a case report says. In such cases, the ... Read more

October 16, 2020October 16, 2020

Sit-to-stand Test Ably Captures Exercise Capacity of Children, Study Finds

News

The 30-second sit-to-stand test is a valid alternative to the traditional six-minute walk test in measuring the exercise capacity of children with bronchiectasis, a study found. The study, “Sit-to-stand test ... Read more

October 12, 2020October 12, 2020

Symptoms of Flares Distinct for Viruses and Bacteria, Study Finds

News

Although the presence of virus or bacteria, or their combination, is associated with acute exacerbations in bronchiectasis patients, each of these microbes is linked to differing symptoms, a study found. These distinctions might ... Read more

October 9, 2020October 9, 2020

Patients With Bronchiectasis Linked to Tuberculosis May Develop More Severe Disease

News

People who develop bronchiectasis after contracting tuberculosis tend to have a more severe form of the disease than those in whom bronchiectasis developed from an unknown cause or is linked ... Read more

October 6, 2020October 6, 2020

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

News, syndicated

Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their favorite photographs in a calendar contest to heighten awareness of rare diseases, ... Read more

October 2, 2020October 2, 2020

Phase 3 Trial Testing Brensocatib for Bronchiectasis Set to Start Soon

News

A global Phase 3 clinical trial of brensocatib in people with non-cystic fibrosis (CF) bronchiectasis is expected to launch by the end of this year, according to the treatment’s developer Insmed. ... Read more

September 28, 2020September 28, 2020

Mild, Severe Bronchiectasis Linked to Different Airway Bacteria, Study Finds

News

People with severe bronchiectasis have different bacteria living in their airways than do patients with mild cases of the lung disease, a new study indicates. The findings also suggest a ... Read more

September 25, 2020September 25, 2020

Immune Cells Ratio May Be Used as Biomarker of Exacerbations, Study Reports

News

The neutrophil to lymphocyte ratio (NLR) — a measure of inflammation calculated by dividing the number of different immune cells — can be used as a biomarker of exacerbations induced ... Read more

September 21, 2020September 21, 2020

Disease Duration, Flare-ups Affect Mental Health of Non-CF Bronchiectasis Patients, Study Finds

News

People with non-cystic fibrosis (CF) bronchiectasis are at an increased risk for anxiety and depression, and this risk is associated with a higher rate of exacerbations (when symptoms suddenly worsen) ... Read more