News

August 20, 2020August 20, 2020

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

News, syndicated

The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. The ... Read more

August 17, 2020August 17, 2020

Use of Airway Clearance Techniques Rises With Flares and Infections

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People with bronchiectasis and a productive cough are more likely to use airway clearance techniques (ACTs) if they experienced exacerbations and were hospitalized due to lung infections, a study revealed. The ... Read more

August 14, 2020August 14, 2020

New Streaming Channel Showcases Rare Disease Films

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When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a new way to bring the films ... Read more

August 10, 2020August 10, 2020

Vest Therapy Lowers Risk of Hospitalization in Non-CF Bronchiectasis, Study Says

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One year of vest therapy with high frequency chest wall oscillation (HFCWO) can reduce the risk of hospitalization and the use of antibiotics, while improving self-reported respiratory health in people ... Read more

August 7, 2020August 7, 2020

CHMP Recommends Arikayce for MAC Lung Infections in Europe

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The Committee for Medicinal Products for Human Use (CHMP), an arm of the European Medicines Agency, has recommended Arikayce — liposomal amikacin for inhalation — as a therapy for lung infections caused by Mycobacterium ... Read more

July 24, 2020July 24, 2020

Inhaled Antibiotics Lower Flare Risk in Non-CF Bronchiectasis, But Have Limits

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Inhaled antibiotics can effectively kill bacteria and lessen exacerbations in people with stable non-cystic fibrosis bronchiectasis (NCFB), but they do not improve lung function or life quality, a review study ... Read more

July 20, 2020July 20, 2020

Low Bacterial Diversity in Lungs Tied to Damaging Enzyme in Bronchiectasis

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A low diversity of bacterial species in the lungs of adults with bronchiectasis is linked with higher levels of an enzyme called active neutrophil elastase (NE), as well as greater ... Read more

July 17, 2020July 17, 2020

Smoking, Respiratory Issues, Older Age Raise Hospital Costs, Chinese Study Finds

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Older age, smoking, and having other respiratory symptoms and conditions increase the hospitalization costs of people with bronchiectasis, a large Chinese study says. The findings also suggest that avoiding overuse ... Read more

July 13, 2020July 13, 2020

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

News, syndicated

The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease Survey to measure the full implications, economic and social, of living with rare disease in ... Read more

July 10, 2020July 10, 2020

Causes, Symptoms of Non-CF Bronchiectasis Have Changed in Children, Study Suggests

News

Children diagnosed with non-cystic fibrosis bronchiectasis since 2002 have better lung function at diagnosis, distinct disease causes, and higher frequency of sputum infections, compared to children followed in the same ... Read more