Updates
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News, syndicated Rare Disease Day at NIH, Set for March 1, Growing Year by Year
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News Bronchiectasis Can Increase Number of Asthma Attacks, Analysis Finds
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News Bronchiectasis May Increase Risk for Severe COVID-19 Disease
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News, syndicated Eurordis Survey: Healthcare Experience Worse for Rare Disease Patients
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News Tobramycin, Inhaled Antibiotic, Eases Symptoms, Study in Off-label Use Finds
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News, syndicated Pandemic Won’t Stop Rare Disease Day on Feb. 28
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News Chronic Fungi Infection Tied to Poor Outcomes in NTM Lung Disease
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News CT Scores for Bronchiectasis, Nodules Predict NTM Recurrence
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News Treatment With Ciprofloxacin Antibiotics Found to Reduce Exacerbations
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News, syndicated NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns
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News Spanish Registry Seen to Capture Disease Scope, May Guide Research
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News, syndicated COVID-19 Vaccines Pose Little Risk to Rare Disease Patients, FDA, CDC Say
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News Increased Risk of Bronchiectasis Linked to Newly Found STAT1 Mutation
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News Some Respiratory Symptoms Should Spark Suspicion of Bronchiectasis in Children
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News, syndicated NORD’s Caregiver Respite Program Continues Through Pandemic
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News, syndicated Art Contest Salutes Creativity of Rare Disease Communities
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News Chronic Fungal Infection May Be Common in Non-CF Bronchiectasis
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News NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum
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News Measuring Procalcitonin in Sputum May Help Manage Flare-ups
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News RHB-204, Oral Treatment for MAC Lung Infections, Put on FDA Fast Track
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News Corticosteroid Use Higher in Children With Bronchiectasis Who Have Asthma
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News Hypertonic Saline May Boost Benefits of Airway Clearance Techniques in Children
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News Endothelial Progenitor Cells (EPCs) Linked to Disease Severity in Study
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News Young Bronchiectasis Patients Less Prepared to Shift to Adult Healthcare, NZ Study Finds
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News Savara Discontinues Apulmiq Program for NCFB Amid Cost-cutting Measures
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News Study Recommends Longer Rest Interval Between 6-min Walk Tests for Non-CF Bronchiectasis Patients
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News Phase 3 ASPEN Trial Testing Brensocatib Now Recruiting; First Patient Dosed
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News, syndicated NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting
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News, syndicated Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe
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News RedHill Launches Trial to Test RHB-204 for Bronchiectasis Plus MAC Lung Infections
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News, syndicated Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry
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News EMA Grants PRIME Status to Brensocatib for Treating Non-CF Bronchiectasis
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News Bronchiectasis Worsens Lung Function, Quality of Life in Severe Asthma, Study Finds
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News Being Underweight Linked to Poorer Lung Function in Bronchiectasis Patients in US Study
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News, syndicated NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits
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News South Korean Tuberculosis Control Program May Have Contributed to Lower Bronchiectasis Rates
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News Arikayce Approved in Europe for MAC Lung Infections in Non-CF Adults
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News, syndicated UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner
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News Bronchiectasis Increases Mortality Risk in People With Steroid-dependent Severe Asthma, Study Finds
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News, syndicated Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say
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News Bronchiectasis Could Be Diagnosis for Children With Persistent Wet Cough, Case Report Says
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News Sit-to-stand Test Ably Captures Exercise Capacity of Children, Study Finds
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News Symptoms of Flares Distinct for Viruses and Bacteria, Study Finds
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News Patients With Bronchiectasis Linked to Tuberculosis May Develop More Severe Disease
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News, syndicated Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos
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News Phase 3 Trial Testing Brensocatib for Bronchiectasis Set to Start Soon
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News Mild, Severe Bronchiectasis Linked to Different Airway Bacteria, Study Finds
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News Immune Cells Ratio May Be Used as Biomarker of Exacerbations, Study Reports
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News Disease Duration, Flare-ups Affect Mental Health of Non-CF Bronchiectasis Patients, Study Finds
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News E-cigarette Use Linked to Bronchiectasis in 3 Cases, Report Suggests
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News Brensocatib Significantly Lowers Flare Risk in Non-CF Bronchiectasis, Trial Shows
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News Bronchiectasis Aggravates Asthma Outcomes, Review Study Finds
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News Case Study Reports COVID-19 Plus Rare Bacterial Infection in Bronchiectasis Patient
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News, syndicated Same But Different Photo Contest Celebrates People With Rare Diseases
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News Analysis Links Pneumonia With Bronchiectasis to Less Mortality, More Infections
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News Protein May Help Monitor Inflammation During, After Bronchiectasis Exacerbations
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News, syndicated Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input
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News Inflammatory Biomarkers Linked to More Severe Disease in COPD With Bronchiectasis
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News Dry Powder Inhaled Antibiotics Safe, Effective for Bronchiectasis, Study Suggests
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News, syndicated EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US
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News Use of Airway Clearance Techniques Rises With Flares and Infections
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News, syndicated New Streaming Channel Showcases Rare Disease Films
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News Vest Therapy Lowers Risk of Hospitalization in Non-CF Bronchiectasis, Study Says
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News CHMP Recommends Arikayce for MAC Lung Infections in Europe
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News Inhaled Antibiotics Lower Flare Risk in Non-CF Bronchiectasis, But Have Limits
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News Low Bacterial Diversity in Lungs Tied to Damaging Enzyme in Bronchiectasis
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News Smoking, Respiratory Issues, Older Age Raise Hospital Costs, Chinese Study Finds
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News, syndicated National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US
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News Causes, Symptoms of Non-CF Bronchiectasis Have Changed in Children, Study Suggests
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News Greater Difficulty in Breathing Linked to More Severe Bronchiectasis, Study Finds
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News Flare Risk Drops if Brensocatib Clears Key Protein from NCFBE Patient Sputum, Trial Finds
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News, syndicated Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic
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News Progenitor Cell Transplant May Safely Stop Progression in Bronchiectasis
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News Renovion Raises $8.1M to Advance ARINA-1 Nebulizer Therapy
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News Brensocatib Named FDA Breakthrough Therapy for Non-CF Bronchiectasis
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News Asthma-associated Bronchiectasis Becoming More Frequent in Spain, Study Finds
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News Coalition Will Address Racial Disparities in Rare Disease Communities
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News Cardiovascular Disease Raises Risk of Bronchiectasis Exacerbations, Study Reports
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News UK Survey: Reduced Pollution Due to COVID-19 Benefits People with Lung Conditions
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News Most Bronchiectasis Patients in Europe Not Tested for NTM Infection as Recommended, Survey Suggests
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News COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say
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News, syndicated Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe
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cystic fibrosis, News, syndicated Video Games Connect Chronically Ill Children Isolated at Home, Hospital
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News, syndicated Unity and EU-wide Efforts Focus of Online Rare Disease Meeting
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News Antibiotic Cayston Effective for Some Bronchiectasis Symptoms but Not All, Study Says
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News, syndicated Rare Diseases Clinical Research Network Opens Online Survey on COVID-19
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News Savara to Advance Bronchiectasis Therapy Apulmiq After Deal With Grifols
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News Vitamin D Deficiency Linked to Poor Lung Function in Adults With Bronchiectasis
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News, syndicated Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say
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News Brensocatib, Potential Bronchiectasis Therapy, to Enter COVID-19 Trial
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News, syndicated NORD Opens COVID-19 Financial Aid Program for Rare Disease Community
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News NTMir Opens Website to Educate Patients About Bronchiectasis, NTM
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News Bronchiectasis in HIV Patients Can Be Misdiagnosed, Poorly Treated
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News, syndicated NORD’s Advice on COVID-19: You’re Stronger Than You Think
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News Bubble-PEP Effective at Clearing Airways in Bronchiectasis, Study Reports
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News NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum
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News Mobile App for SmartVest System Available for Patients’ Use
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News Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19
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News Molgradex Stops Bacteria in Bronchiectasis Patients with Lung Infections, Trial Shows
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